• 05 Aug 2021
    • 2:00 PM - 4:00 PM (EDT)
    • Online

    The Data Governance Collaborative (DGC) at MHDC is a collaboration between payer and provider organizations convened to discuss, design, and implement better ways to standardize and share health related data. The DGC incorporates industry standards and automation as much as possible for exchange among payers, providers, patients/members, and other interested parties who need this data.

    The DGC regularly holds deep dives into specific topics related to health data and interoperability. These meetings are public and bring the community together to look at data collected, industry workflows, and improvements that could be made related to data standardization and interoperability. 

    The next DGC deep dive will cover social determinants of health (SDOH) data. This is a large topic and we do not anticipate covering everything in one meeting. This first meeting will focus on the current state of data collection and workflows. After a brief look at industry efforts like the Gravity Project, we will look at how and what information gets collected, existing exchange of this data, referral processes and actions taken, and how the data loop gets closed now (if it does).

    We do not anticipate focusing on future needs or additional data desired at this time rather, as previously mentioned, we expect this to be the first of several conversations on the topic. We look forward to your help gathering information about the current state of SDOH data within healthcare organizations. Please join us.

    • 17 Aug 2021
    • 11:00 AM - 1:00 PM (EDT)
    • On-Line Only

    Granular Data Segmentation to Protect Privacy and Promote Equitable Interoperability

    Compassion Training for Healthcare Providers - Osher Center For Integrative Medicine


      Our discussion will focus around the ability to share patient information between clinical providers, family members/caregivers and other entities meaningfully improve the care of individuals and the health of communities.  When a patient has data they consider to be sensitive in their medical record, they may wish to control how such data gets shared; state and/or federal law may also protect the sharing of specific sensitive data as a means to preserve the integrity of the patient-provider relationship.

      Current standards available to granularly segment sensitive data are evolving and have not been widely adopted for a number of reasons including the failure of these standards to meet a number of high priority use cases, a lack of implementation guidance around challenges such as how to balance patient safety with privacy concerns, and the lack of a regulatory impetus.  As a result, many health care organizations and other data holders have resulted in blunt algorithms to ensure legal compliance, which may result in care inequities for patients with sensitive health conditions.

      The Protecting Privacy to Promote Interoperability (PP2PI) Workgroup is a national multidisciplinary interest group of over 160 expert stakeholders from across the industry who have come together to address this problem.  The workgroup has developed a set of nationally-acceptable use cases, and is pursuing a seward-maintained terminology value set for sensitive conditions.  Together, these are being leveraged to support standards revision and development, focused on Data Segmentation for Privacy (DS4P) FHIR and the underlying security labels.  The group is drafting an Implementation Guide with consensus-driven guidance around barriers such as access control provisioning, visualization of redacted data and its utilization in decision support algorithms, and break-the-glass policies.

      Lessons Learned:

      • The ability to share patient information between clinical providers, family members/caregivers and other entities is essential to the provision of good care; in many cases, NOT sharing certain information with specific individuals is just as essential to providing optimal care.
      • Lack of widespread implementation of technical standards for granular segmentation of data has led to the adoption of blunt algorithms which may result in care inequities.
      • The Protecting Privacy to Promote Interoperability (PP2PI) Workgroup seeks to address this issue by bringing together multidisciplinary stakeholders across the industry to revise standards and develop consensus-driven implementation guidance, in order to support future policy.

      Spearker:    Hannah K. Galvin, MD, FAAP, FAMIA,                                                           Chief Medical Information Officer

      • 24 Aug 2021
      • 1:00 PM - 2:30 PM (EDT)
      • Online

      CMS Interoperability Updates

      CMS Recovery Thresholds Create Safe Harbor - MASSIVE


      Lack of seamless data exchange in healthcare has historically detracted from patient care, leading to poor health outcomes, and higher costs. The Centers for Medicare and Medicaid Services (CMS) has established policies that break down barriers in the nation’s health system to enable better patient access to their health information, improve interoperability and unleash innovation, while reducing burden on payers and providers.

      Through these regulations, patients and their healthcare providers will have the opportunity to be more informed, which can lead to better care and improved patient outcomes, while at the same time reducing burden. In a future where data flows freely and securely between payers, providers, and patients, we can achieve truly coordinated care, improved health outcomes, and reduced costs.  

      Anticipated Lessons Learned:

      • Hear about how CMS is making progress towards an interoperable healthcare system that increases access to data and reduces burden.
      • Learn about the CMS Interoperability Rules that will drive change in how clinical and administrative information is exchanged between payers, providers and patients, and will support more efficient care coordination.
      • Understand the CMS Interoperability API Requirements and next steps related to the future of healthcare interoperability.

      Speaker:  Alexandra (Alex) Mugge, MPH,  Director and Deputy Chief Health Informatics Officer

      • 14 Sep 2021
      • 10:00 AM - 12:00 PM (EDT)
      • Online

      Design Thinking for Health and Healthcare Data Visualizations


      Approaching a data visualization project can feel like being trapped in a carnival house of mirrors—those maze-like puzzles that are designed to confuse people in unusual, humorous, sometimes frightening, even paralyzing ways that visually distort and cloak the unobstructed path through and out.

      But creating data visualizations does not have to feel that way. Establishing a process grounded in user-centered requirements gathering and design thinking concepts and methods helps illuminate the path toward useful, understandable, visually pleasing data displays.

      In this webinar Kathy Rowell, Co-Founder and Principal at HealthDataViz, will describe the design-thinking process for creative problem-solving that is human-centered, empathetic, collaborative, experimental, and optimistic. 

      She will also use relevant health and healthcare data visualization projects to demonstrate how the five-design thinking foundational concepts – empathize, define, ideate, prototype and test -- provide the structure teams need to create clear and compelling dashboards, reports and multidimensional exploratory displays (MEDS™) that people love to use.

      Speaker: Kathy Rowell, Co-Founder and Principal

      • 30 Sep 2021
      • 11:00 AM - 12:30 PM (EDT)
      • Online

      The CARIN Alliance:

      Advancing Digital Identity, Authentication and Federation


      The only constant in health care is the individual enrolling in coverage or receiving care. Therefore, CARIN supports “person-centric” digital identity credentials, where an individual has a portable, high-assurance digital credential they can use to control when and how their personal information is shared across systems. The individual person becomes the “single source of truth,” and regardless of whether the information is out of date, it’s still unique to the individual and the individual can use that same digital identity credential whenever they log in to a new system.

      We envision a world where:

      • A person can create their own unique digital identity credential prior to or at the time when they choose a coverage type during open enrollment.
      • That same digital identity credential could be used to access their benefit and coverage information, including their pharmacy, formulary, and prescription drug information, when they are scheduling an appointment with their physician or picking up prescriptions.
      • The more than 296 million Americans who have some type of government or private sector coverage are not required to re-identify themselves when they visit a physician or hospital.
      • The 27.5 million Americans who do not currently have health care coverage or do not have a government issued identity could create their own digital identity credential to better coordinate their care.

      The CARIN Alliance seeks to advance an equitable and more efficient health care experience by allowing individuals the ability to create, manage, and use their own digital identity, and then voluntarily use that digital identity across multiple systems to provide a more seamless and robust experience for themselves and their families. CARIN has worked with HHS, CMS, and the ONC along with multiple trust framework organizations over the last couple of years to create a digital federated trust agreement that allows for a marketplace of trust framework organizations to support a common policy framework so multiple identity providers can be trusted by multiple relying parties. We believe federating digital identity is a many-to-many problem, needs a marketplace of solutions, and requires a public/private partnership to help it scale.