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Health Information Security and Privacy Collaborative (HISPC)

MA-HISPC Overview

Phase 1 MA-HISPC Project Background

Phase 2 MA-HISPC Consent Management Project

What's Happening in Massachusetts

Coming Soon - Roundtable Discussion

MA-HISPC Overview - EHR Privacy & Security

How will Clinicians Share Your Health Records Electronically,
And Keep them Private and Secure?

The Role of the Consortium

President Bush’s call for all Americans to have electronic health records by 2014 has fueled many advances in healthcare technology. Today, technologies help your physician to order and calculate the proper dosing of medications, send electronic prescriptions to your pharmacist, share your x-rays online with consulting specialists and in some communities, immediately access your full medical history when you arrive unexpectedly at an emergency room.

The Massachusetts Health Data Consortium is a nationally recognized leader of collaborative healthcare IT projects that are revolutionizing the delivery of patient care. Each project is carefully guided by representatives from all healthcare stakeholders in the State, including: primary care physicians, specialists, consumers, nurses, payers, pharmacists, researchers, administrators, IT directors and patients. This unique "neutral convener" role allows the Consortium to build innovative, practical and trusted solutions. See What’s Happening in Massachusetts for summary of these projects.

Tackling Patient Privacy and Security

Federal privacy laws, most notably the Privacy Act of 1974 and HIPAA, form the legal foundation for privacy and security in the healthcare sector, however, variation in state laws and requirements for obtaining patient consent for the disclosure of information complicate the design for electronic health networks. These laws were created for a paper-based healthcare world, not the brave new world of digital healthcare.

In March of 2006, the Commonwealth designated the Consortium to carry out important work around patient privacy rights and the impact of digital health information. As the designee, the Consortium joined a national effort in May of 2006, funded by the federal government, to study privacy and security policy questions, regulations and business practices. The final outcome of this year-long effort not only shined a bright light on emerging privacy and security issues when data becomes digital, but also generated detailed solutions, best practices and suggested implementation plans. See the Consortium’s HISPC Phase 1 outcomes.

A second phase of this national project is currently underway and concludes in December of 2007. In this second phase, the Consortium will deeply examine the process of patient consent and how this process can be managed electronically to facilitate proper and appropriate disclosures of digital health information. The Consortium expects this work to produce a roadmap for a technical pilot demonstration project in Massachusetts.

Overall, the Consortium is involved in these efforts because its members firmly believe that patient privacy and security rights must be thoughtfully examined and updated to encompass digital forms of health data, but most certainly should not interfere or delay the future development of health networks that bring higher quality of care and efficiency to the citizens of the Commonwealth.

More Information

Since 1978, the Consortium has been acting as a convener, educator, project manager and provider of reliable information. Fulfilling the role of educator, the Consortium will post outcomes, reports and roadmaps from its privacy and security work on this webpage.


For additional MA-HISPC Project information, please contact Diane Stone, Project Manager, MA-HISPC Project via e-mail. We welcome your further questions & look forward to your participation in our work and our events!